EXPeRT publications – Sorted by disease

General publications

Schneider DT, Ferrari A, Orbach D, Virgone C, Reguerre Y, Godzinski J, et al. A virtual consultation system for very rare tumors in children and adolescents – an initiative of the European Cooperative Study Group in Rare Tumors in Children (EXPeRT). EJC Paediatric Oncology, Volume 3, 2024, 100137. https://doi.org/10.1016/j.ejcped.2023.100137.

Orbach D, Brecht I, Corradini N, Bouchoucha Y, Roganovic J, Bourdeaut F, et al. The role of cancer predisposition syndrome in children and adolescents with very rare tumours. EJC Paediatric Oncology, Volume 2, 2023, 100023. https://doi.org/10.1016/j.ejcped.2023.100023.

Roganovic J, Bien E, Ferrari A, Vassal G, Trama A, Casali PG, et al. Solutions for optimal care and research for children and adolescents with extremely rare cancers developed within the Joint Action for Rare Cancers (JARC). EJC Paediatric Oncology, Volume 2, 2023, 100130. https://doi.org/10.1016/j.ejcped.2023.100130.

Virgone C, Ben Ami T, Roganovic J, Bien E, Reguerre Y, Ferrari A, et al. Age-related biological differences in children’s and adolescents’ very rare tumors. EJC Paediatric Oncology, Volume 2, 2023, 100027, doi.org/10.1016/j.ejcped.2023.100027.

Ferrari A, Schneider DT, Bisogno G, Trama A. Joining forces for pediatric very rare tumors. Oncotarget. 2019 May 3;10(33):3084-3085. https://doi.org/10.18632/oncotarget.26871.

Ferrari A, Brecht IB, Gatta G, Schneider DT, Orbach D, Cecchetto G, et al. Defining and listing very rare cancers of paediatric age: consensus of the Joint Action on Rare Cancers in cooperation with the European Cooperative Study Group for Pediatric Rare Tumors. Eur J Cancer. 2019 Mar;110:120-126. https://doi.org/10.1016/j.ejca.2018.12.031.

Bisogno G, Ferrari A, Bien E, Brecht IB, Brennan B, Cecchetto G, et al. Rare cancers in children – The EXPeRT Initiative: a report from the European Cooperative Study Group on Pediatric Rare Tumors. Klin Padiatr. 2012 Oct;224(6):416-20. https://doi.org/10.1055/s-0032-1327608.

 

Adrenocortical tumors

Virgone C, Roganovic J, Vorwerk P, Redlich A, Schneider DT, Janic D, et al. Adrenocortical tumours in children and adolescents: The EXPeRT/PARTNER diagnostic and therapeutic recommendations. Pediatr Blood Cancer. 2021 Jun;68 Suppl 4:e29025. https://doi.org/10.1002/pbc.29025.

Cecchetto G, Ganarin A, Bien E, Vorwerk P, Bisogno G, Godzinski J, et al. Outcome and prognostic factors in high-risk childhood adrenocortical carcinomas: A report from the European Cooperative Study Group on Pediatric Rare Tumors (EXPeRT). Pediatr Blood Cancer. 2017 Jun;64(6). doi: 10.1002/pbc.26368. https://doi.org/10.1002/pbc.26368.

 

Cutaneous melanoma

Ferrari A, Lopez Almaraz R, Reguerre Y, Cesen M, Bergamaschi L, Indini A, et al. Cutaneous melanoma in children and adolescents: The EXPeRT/PARTNER diagnostic and therapeutic recommendations. Pediatr Blood Cancer. 2021 Jun;68 Suppl 4:e28992. https://doi.org/10.1002/pbc.28992.

Brecht IB, De Paoli A, Bisogno G, Orbach D, Schneider DT, Leiter U, et al. Pediatric patients with cutaneous melanoma: A European study. Pediatr Blood Cancer. 2018 Jun;65(6):e26974. https://doi.org/10.1002/pbc.26974.

 

Lung carcinoma

Abele M, Bajčiová V, Wright F, Behjati S, Voggel S, Schneider DT, et al. Primary lung carcinoma in children and adolescents: An analysis of the European Cooperative Study Group on Paediatric Rare Tumours (EXPeRT). Eur J Cancer. 2022 Nov;175:19-30. https://doi.org/10.1016/j.ejca.2022.08.007.

 

Melanotic neuroectodermal tumor of infancy

Krawczyk M, Styczewska M, Fernandez C, Alaggio R, Szydlowski J, Brecht I, et al.  Focus on melanotic neuroectodermal tumor of infancy. EJC Paediatric Oncology, Volume 3, 2023, 100141. https://doi.org/10.1016/j.ejcped.2023.100141.

 

Mesothelioma

Orbach D, André N, Brecht IB, López Almaraz R, Ben-Ami T, Vermersch S, et al. Mesothelioma in children and adolescents: the European Cooperative Study Group for Pediatric Rare Tumors (EXPeRT) contribution. Eur J Cancer. 2020 Nov;140:63-70. https://doi.org/10.1016/j.ejca.2020.09.011.

 

Nasopharyngeal carcinoma

Ben-Ami T, Kontny U, Surun A, Brecht IB, Almaraz RL, Dragomir M, et al. Nasopharyngeal carcinoma in children and adolescents: The EXPeRT/PARTNER diagnostic and therapeutic recommendations. Pediatr Blood Cancer. 2021 Jun;68 Suppl 4:e29018. https://doi.org/10.1002/pbc.29018.

 

NUT carcinoma

Lemelle L, Flaadt T, Fresneau B, Moya-Plana A, Timmermann B, Roganovic J, et al. NUT Carcinoma in Children and Adolescents: The Expert European Standard Clinical Practice Harmonized Recommendations. J Pediatr Hematol Oncol. 2023 May 1;45(4):165-173. https://doi.org/10.1097/mph.0000000000002568.

 

Olfactory neuroblastoma (esthesioneuroblastoma)

Carlo DD, Fichera G, Dumont B, Pozzo E, Timmermann B, Luscan R, et al. Olfactory neuroblastoma in children and adolescents: The EXPeRT recommendations for diagnosis and management. EJC Paediatric Oncology, Volume 3, 2024, 100136. https://doi.org/10.1016/j.ejcped.2023.100136.

 

Pancreatoblastoma

Bien E, Roganovic J, Krawczyk MA, Godzinski J, Orbach D, Cecchetto G, Barthlen W, et al. Pancreatoblastoma in children: EXPeRT/PARTNER diagnostic and therapeutic recommendations. Pediatr Blood Cancer. 2021 Jun;68 Suppl 4:e29112. https://doi.org/10.1002/pbc.29112.

Bien E, Godzinski J, Dall’igna P, Defachelles AS, Stachowicz-Stencel T, Orbach D, et al. Pancreatoblastoma: a report from the European cooperative study group for paediatric rare tumours (EXPeRT). Eur J Cancer. 2011 Oct;47(15):2347-52. https://doi.org/10.1016/j.ejca.2011.05.022.

 

Pleuropulmonary blastoma

Bisogno G, Sarnacki S, Stachowicz-Stencel T, Minard Colin V, Ferrari A, Godzinski J, et al. Pleuropulmonary blastoma in children and adolescents: The EXPeRT/PARTNER diagnostic and therapeutic recommendations. Pediatr Blood Cancer. 2021 Jun;68 Suppl 4(Suppl 4):e29045. https://doi.org/10.1002/pbc.29045.

 

Salivary gland carcinoma

Schneider DT, Orbach D, Virgone C, Reguerre Y, Godzinski J, Bien E, et al. Salivary Gland Carcinomas in Children and Adolescents: A Retrospective Analysis of the European Cooperative Study Group for Pediatric Rare Tumours (EXPeRT). EJC Paediatric Oncology, Volume 2, 2023, 100129, https://doi.org/10.1016/j.ejcped.2023.100129.

Surun A, Schneider DT, Ferrari A, Stachowicz-Stencel T, Rascon J, Synakiewicz A, et al. Salivary gland carcinoma in children and adolescents: The EXPeRT/PARTNER diagnosis and treatment recommendations. Pediatr Blood Cancer. 2021 Jun;68 Suppl 4:e29058. https://doi.org/10.1002/pbc.29058.

 

Sex cord stromal tumors

Schneider DT, Orbach D, Ben-Ami T, Bien E, Bisogno G, Brecht IB, et al. Consensus recommendations from the EXPeRT/PARTNER groups for the diagnosis and therapy of sex cord stromal tumors in children and adolescents. Pediatr Blood Cancer. 2021 Jun;68 Suppl 4:e29017. https://doi.org/10.1002/pbc.29017.

Schneider DT, Orbach D, Cecchetto G, Stachowicz-Stencel T, Brummel B, Brecht IB, et al. Ovarian Sertoli Leydig cell tumours in children and adolescents: an analysis of the European Cooperative Study Group on Pediatric Rare Tumors (EXPeRT). Eur J Cancer. 2015 Mar;51(4):543-550. https://doi.org/10.1016/j.ejca.2014.11.013.

 

Thymoma

Stachowicz-Stencel T, Orbach D, Brecht I, Schneider D, Bien E, Synakiewicz A, et al. Thymoma and thymic carcinoma in children and adolescents: a report from the European Cooperative Study Group for Pediatric Rare Tumors (EXPeRT). Eur J Cancer. 2015 Nov;51(16):2444-52. https://doi.org/10.1016/j.ejca.2015.06.121.